Das Klinikum

Dr. rer. nat. Carola Reinhard

Dr. rer. nat. Carola Reinhard

Wissenschaftsmanagerin

Projektmanagerin des Europäischen Referenznetzwerks für Seltene Neurologische Erkrankungen (ERN-RND).

Kontakt

Telefonnummer: 07071 29-72191

Faxnummer: 07071 29-25061

E-Mail-Adresse: carola.reinhard@med.uni-tuebingen.de

Klinik / Institut / Zentrum

  • 1996 - 2001Studium Biologie, Universitäten Bochum und Münster
  • 2002 - 2006Promotionsstudiengang, Eberhard-Karls Universität Tübingen
  • 01/2006Dr. rer. nat. Eberhard-Karls Universität Tübingen
  • 2006 - 2009medimod research institute GmbH, Reutlingen
  • seit 08/2009Institut für Medizinische Genetik und Angewandte Genomik, Universitätsklinikum Tübingen
  • 08/2009 - 10/2012Projektmanagement Neuromodel (www.neuromodel.eu)
  • 11/2009 - 10/2013Projektmanagement Neurasync (www.neurasync.eu)
  • 03/2011 - 02/2015Projektmanagement TreatPolyQ (www.treatpolyq.eu)
  • 10/2012 - 01/2017Projektmanagement Moving Beyond (www.moving-beyond.eu)
  • 11/2012 - 10/2016Projektmanagement PhenoRat (www.phenorat.eu)
  • 03/2016 - 02/2019Projektmanagement Centre-PD (www.centre-pd.lu)
  • seit 09/2017Projektmanagement ERN-RND (www.ern-rnd.eu)
  • Reinhard C, Wolffgramm J (2005). Abstinence-enduring behavioural alterations as a consequence of long-term voluntary consumption of low doses of MDMA and THC in rats. Neurology Psychiatry and Brain Research 12(2):75-84.
  • Reinhard C, Wolffgramm J (2006). Long-term voluntary consumption of MDMA and THC in rats is modified by individual and situational factors. Addict Biol. 2006 Jun;11(2):131-44.
  • Lewejohann L et al. (2006). Environmental bias? Effects of housing conditions, laboratory environment and experimenter on behavioral tests. Genes Brain Behav. 2006 Feb;5(1):64-72.
  • Painous C et al. (2020). Management of rare movement disorders in Europe: outcome of surveys of the European Reference Network for Rare Neurological Diseases. Eur J Neurol. 2020 Aug;27(8):1493-1500.
  • Atalaia A et al. (2020). A guide to writing systematic reviews of rare disease treatments to generate FAIR-compliant datasets: building a Treatabolome. Orphanet J Rare Dis. 2020 Aug 12;15(1):206.
  • Reinhard C et al. (2021) The European Reference Network for Rare Neurological Diseases. Front Neurol. 2021 Jan 14;11:616569. doi: 10.3389/fneur.2020.616569.
  • Post AEM et al. (2021). Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases. Orphanet J Rare Dis. 2021 16:135
  • Benson M et al. (2022). Development of a patient journey map for people living with cervical dystonia. Orphanet J Rare Dis. 2022 17:130
  • Aleksova K et al. (2022). European Academy of Neurology guidance for developing and reporting clinical practice guidelines on rare neurological diseases. Eur J Neurology 2022 29: 1571-1586
  • Centen LM et al. (2023). Dystonia management across Europe within ERN-RND: current state and future challenges. Eur J Neurology 2023 Feb;270(2):797-809.
  • Vallortigara J et al. (2023). Patient pathways for rare diseases in Europe: ataxia as an example. Orphanet Journal of Rare Diseases 2023 18:328.
  • Nanetti L et al. (2023). Child-to-adult transition: a survey of current practices within the European Reference Network for Rare Neurological Diseases (ERN-RND). Neurol Sci. 2023 Oct 19. doi: 10.1007/s10072-023-07101-3. Epub ahead of print.
  • Morris S et al. (2023). Impact of specialist ataxia centres on health service resource utilisation and costs across Europe: cross-sectional survey. Orphanet J Rare Dis. 2023 Dec 7;18(1):382.
  • Graessner H, Reinhard C et al. (2024). Recommendations for optimal interdisciplinary management and healthcare settings for patients with rare neurological diseases. Orphanet J Rare Dis. 2024 Feb 13;19(1):62.
  • Dominguez Carral J et al. (2024). Dyskinetic crisis in GNAO1-related disorders: clinical perspectives and management strategies. Front. Neurol. 15:1403815.doi: 10.3389/fneur.2024.1403815
  • Nou-Fontanet L et al. (2024). Insights from European Reference Network for rare neurological disorders study surveys on diagnosis, treatment, and management of NKX2-1-related disorders. European Journal of Padiatric Neurology, 51: 110-117.
  • Amato MA et al. (2024). Improving paediatric movement disorders care: Insights on rating scales utilization and clinical practice. European Journal of Paediatric Neuology 52: 10-19.
  • Wittebrod C, Boban M, Cagnin A et al. (2024). Pharmacotherapy for behavioural manifestations in frontotemporal dementia: An expert consensus from the European Reference Network for Rare Neurological Diseases (ERN-RND) Eur J Neurol. 2024:e16446. doi:10.1111/ene.16446
  • Lavorgna L et al. (2024). European Reference Network on Rare Neurological Disease (ERN-RND) Telerehabilitation Working Group. The Growing Role of Telerehabilitation and Teleassessment in the Management of Movement Disorders in Rare Neurological Diseases: A Scoping Review. Telemed J E Health. 2024 Sep;30(9):2419-2430. doi: 10.1089/tmj.2023.0702.
  • Vallortigara J et al. (2025). Comparison of specialist ataxia centres with non-specialist services in terms of care acccess and organisation, helath services resource utilisation and costs in Germany using patient-reported data. Heliyon 11 (2025) e42121. doi:10.1016/j.heliyon.2025.e42121 .
  • Vanegas MI et al. (2025). Approach to Myoclonus Dystonia Syndrome: A European Reference Network Survey. Mov Disord Clin Pract. 2025 Mar 15. doi: 10.1002/mdc3.70028. Epub ahead of print.